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African-American Lupus Foundation, Inc.
Carol Taylor, Executive Director
C arol Taylor is the founding Executive Director of the African American Lupus Foundation Inc., in 1990 and the sole owner of Carol Taylor Associates Inc., a management, consultant and training firm. Carol graduated from the University of Minnesota with a Masters Degree in English Education and Curricululm in 1982. She was a candidate for the Doctoral Degree in Education Administration when she was diagnoised with Lupus Erythematosus (SLE) in 1985. After spending five years in treatment and recovery, Carol begin her road back to engaging in an active life after Lupus. With Lupus in remission, Carol became active and performed volunteer counseling of other women with Lupus, especially African American and other women of color. With the support of the Minnesota State Department of Vocational Rehabilitation, The Lupus Foundation of Minnesota, The Disability Alliance Council, The Governor's Council on Disabilities and The United Way of Minnesota, Carol was able to find support that she needed to make her feel valued, rewarded and recognized in the community.

The African American Lupus Foundation came into being because Carol realized it was difficult for Women of Color to seek help and assistance for many and varied reason to include loss of income and status in the household and a life of isolation. Carol's background as a public school teacher, employment and transition counselor, religious counselor, sales and market specialist gave her a broad background and training as the Executive Director and CEO for the African American Lupus Foundation and Program Manager for the Somali Community of Minnesota, Inc.

Lupus has many shades. It can affect people of different races, ethnicities, and ages, both men and women. It can look like different diseases. It's different for every person who has it. Lupus is an autoimmune disease. Ones body immune system is like an army with hundreds of soldiers. The immune system's job is to fight foreign substances in the body, like germs and viruses. In autoimmune diseases, the immune system is out of control. It attacks healthy tissues, not germs. It isn't cancer nor aids. Lupus is a disease that can affect many parts of the body. Everyone reacts differently. One person with Lupus may have swollen knees and fever. Another person may be tired all the time or have kidney trouble. Someone else may have rashes. Lupus can involve the joints, the skin, the kidney, the lungs, the heart and/or the brain. The three main types of lupus: (1). Systemic Lupus Erythematosus is the most common form. It's sometimes called SLE, or just lupus. The word "systemic" means that the disease can involve many parts of the body such as the heart, lungs, kidneys, and brain. SLE symptoms can be mild or serious. (2). Discoid-Induced Lupus Erythematosus mainly affects the skin. A red rash may appear, or skin on the face, scalp, or elsewhere may change color. (3). Drug-Induced Lupus is triggered by a few medicines. It's like SLE, but symptoms are usually milder. Most of the time, the disease goes away when the medicines are stopped. More men develop drug-induced lupus because the drugs that cause it hydralazine and procainamide, are used to treat heart conditions that are more common in men.

For Carol, Lupus was a serious and even life-threatening problem which if left untreated could have been fatal. Lupus presented itself in various ways. The onset was gradual and begin to affect her graduate level studies to the point where she sought out and received validation that her diagnoses was Lupus. Carol participated with the Lupus Foundation of Minnesota in 1988 as an active member and volunteer in working specifically with African American Women with Lupus while she was in recovery herself. Carol established the African American Lupus Foundation Inc., in 1990 out of a need to promote and improve the health and well being of African Americans as well as other refugees and immigrants in the Greater Twin Cities area by bridging the gap between the culturals and the culture and religious beliefs of the health care professions and other professions to include government social services and the business community who are involved in providing services for this population.

Carol Taylor
Executive Director

Sam Taylor
Board Chairperson
University of Phoenix Professor

Iam Taylor
Office Manager

 



 

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